ACTION ALERT: Ask Your Member of Congress to Join the Rare Disease Congressional Caucus!

May 15, 2013

Help us strengthen the rare disease community’s voice on Capitol Hill by taking three minutes to ask your member of Congress to join the Rare Disease Caucus.

It’s easy: the Action Center has a draft letter that will automatically be sent to your member of Congress. Just put in your name and address and click send. We encourage you to personalize the letter to share information about your specific disease. If your Congress member is already on the Caucus, the letter will automatically populate as a thank you letter instead, which are just as important to send!

It can take up to 10 letters from constituents for a member to respond, so please share this Action Alert with your friends, family and colleagues. Join our Facebook event and invite your friends:

The Rare Disease Congressional Caucus will help bring public and Congressional awareness to the unique needs of the rare disease community– patients, physicians, scientists and industry, and create opportunities to address roadblocks in access to and development of crucial treatments. The Caucus will give a permanent voice to the rare disease community on Capitol Hill. Working together, we can find solutions that turn hope into treatments.

Learn more on Facebook | Rare Advocates Website | Take Action

Brought to you by Julia Jenkins Of the Rare Disease Legislative Advocates.

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