We are pleased to invite you to lobby with us on March 3 and 4, 2014 for the Medical Foods Equity Act (MFEA) in Washington, D.C.! The MFEA would require all federal programs to cover the cost of medical foods (both formula and food modified to be low in protein) for children and adults with PKU and other inborn errors of metabolism.
The lobbying will take place on both Monday, March 3 and Tuesday, March 4. Volunteers will be paired with seasoned advocates for the lobbying appointments. If you can’t make it to D.C. in March, you can still help us by securing appointments for the NPKUA with your member of Congress. If you are interested in joining our efforts in D.C. or making an appointment for the NPKUA volunteers, please contact Amy Oliver at [email protected] for more information and materials.
Information is also available on the NPKUA website here https://r20.rs6.net/tn.
Thank you for your help in advocating for the MFEA! Together we can make our voices heard!
Thank you,
The National PKU Alliance
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