When 4-year-old Malena and her family discovered her diagnosis of Spinal Muscular Atrophy (SMA) they decided to gather their local Sacramento community for the First Annual Sacramento Cure SMA 5K Walk and Roll. Thanks to the success of the fundraiser, clinical trials are up and running—an important milestone on the journey to the cure. To date the community has raised over $50,000 towards a cure. The community is overjoyed with the recent development of clinical trials now being open to these patients across the globe–And this is just the beginning!
Spinal muscular atrophy (SMA) is a disease that robs people of physical strength, affecting the ability to walk, eat, or breathe. It is the number one genetic cause of death for infants. But there’s great reason for hope. We know what causes SMA and what we need to do to develop effective therapies, and we’re on the verge of major breakthroughs that will strengthen our children’s bodies, extend life, and eventually lead to a cure.
Living in the greater Sacramento region and beyond? Consider joining this year on October 17th, 2015. Registration opens: 8:00am, walk begins promptly at 10:30 am.
Dinger,will also be making a special “guest appearance” as well as some fabulous super hero friends. This event is hosted at beautiful William Land Park at the Village Green so don’t forget to bring your lawn chairs and picnic blankets to take in the scenery.
There will be crafty activities for the kids, face painting, Raffle prizes ,a DJ and more.
Register, Create a Team, or donate at events.curesma.org/2015SacWNR
The money that you raise will fund groundbreaking research and vital family support through Cure SMA, the leading organization dedicated to developing a treatment and cure for SMA.
Cost:
Adults: $25.
Youth ages 6-17: $10.
Children 5 and under: free.
Location:
William Land Regional Park
4000 S. Land Park Drive
Sacramento, CA
Phone:
800.886.1762
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