Catching Up with the RARE Daily: Giving Tuesday Gratitude & New Stories

December 5, 2014

A big thank you to all who donated on #GivingTuesday to Global Genes! This week’s stories involve new series from our blogger team, op-eds on non-profit investment models and everything new in the word of rare disease.

Diagnosis

Global Genes’ Inaugural Open Science Data Challenge expands known phenotype for Rare Neurodevelopmental Disorders

The Inaugural Xcelerate RARE Open Science Data Challenge ran from May 31 – August 31, 2023, with […]

Diagnosis

Top Tips for Newly Diagnosed with a RARE Disease

Getting a new diagnosis brings a flood of questions, uncertainty and unknowns. We asked our community who […]

Diagnosis

Driving Awareness of Thyroid Eye Disease

Global Genes is excited to collaborate with Viridian Therapeutics and TED Community Organization through our Corporate Alliance […]

Diagnosis

Why Can’t People with RARE Diseases & Wheelchairs Fly Major Airlines?

Sign Open Letter to Improve Accessibility on Airlines As an organization founded to gather together advocates for […]

DEI

Top 10 Takeaways from the 2023 RARE Health Equity Forum

Whether you attended in person or watched the live stream, we hope that you now have ideas […]

Diagnosis

Top 10 Takeaways from the 2023 RARE Advocacy Summit

Did you LEVEL UP while attending or live streaming the 2023 RARE Advocacy Summit? We certainly did! […]

Diagnosis

Global Genes Team Collaborates with Homocystinuria Community and Researchers on Report

The Homocystinuria (HCU) community, Dr. Kim Chapman (Children’s National Rare Disease Institute), Dr. Mary Chapman (UPMC Children’s […]

Diagnosis

Breakthroughs Begin with You: Cure SMA Celebrates Spinal Muscular Atrophy Awareness Month

August is Spinal Muscular Atrophy (SMA) Awareness Month, so Global Genes invited Cure SMA, a Global Advocacy […]

Diagnosis

Five Resources For Grieving

August 30 is National Grief Awareness Day. As there are many types of grief and no two […]

Stay Connected

Facebook Twitter Instagram Youtube

Catching Up with the RARE Daily: Giving Tuesday Gratitude & New Stories

Related

Global Genes’ Inaugural Open Science Data Challenge expands known phenotype for Rare Neurodevelopmental Disorders

Top Tips for Newly Diagnosed with a RARE Disease

Driving Awareness of Thyroid Eye Disease

Why Can’t People with RARE Diseases & Wheelchairs Fly Major Airlines?

Top 10 Takeaways from the 2023 RARE Health Equity Forum

Top 10 Takeaways from the 2023 RARE Advocacy Summit

Global Genes Team Collaborates with Homocystinuria Community and Researchers on Report

Breakthroughs Begin with You: Cure SMA Celebrates Spinal Muscular Atrophy Awareness Month

Five Resources For Grieving

Stay Connected