Related
Global Genes’ Inaugural Open Science Data Challenge expands known phenotype for Rare Neurodevelopmental Disorders
The Inaugural Xcelerate RARE Open Science Data Challenge ran from May 31 – August 31, 2023, with […]
Read moreTop Tips for Newly Diagnosed with a RARE Disease
Getting a new diagnosis brings a flood of questions, uncertainty and unknowns. We asked our community who […]
Read moreDriving Awareness of Thyroid Eye Disease
Global Genes is excited to collaborate with Viridian Therapeutics and TED Community Organization through our Corporate Alliance […]
Read moreWhy Can’t People with RARE Diseases & Wheelchairs Fly Major Airlines?
Sign Open Letter to Improve Accessibility on Airlines As an organization founded to gather together advocates for […]
Read moreTop 10 Takeaways from the 2023 RARE Health Equity Forum
Whether you attended in person or watched the live stream, we hope that you now have ideas […]
Read moreTop 10 Takeaways from the 2023 RARE Advocacy Summit
Did you LEVEL UP while attending or live streaming the 2023 RARE Advocacy Summit? We certainly did! […]
Read moreGlobal Genes Team Collaborates with Homocystinuria Community and Researchers on Report
The Homocystinuria (HCU) community, Dr. Kim Chapman (Children’s National Rare Disease Institute), Dr. Mary Chapman (UPMC Children’s […]
Read moreBreakthroughs Begin with You: Cure SMA Celebrates Spinal Muscular Atrophy Awareness Month
August is Spinal Muscular Atrophy (SMA) Awareness Month, so Global Genes invited Cure SMA, a Global Advocacy […]
Read moreFive Resources For Grieving
August 30 is National Grief Awareness Day. As there are many types of grief and no two […]
Read more