Day 2: Patient Advocacy Summit 2014

September 12, 2014

After an extraordinary first day with fantastic speakers and a packed room, Global Genes prepares for day two of their annual Patient Advocacy Summit.

Though we did have some technical difficulties yesterday, the entire event is being recorded and will be online in full in the next two weeks. You can view today’s summit online at this link:

Today, our Deep Dive sessions will be hosted in separate rooms to  give our attendees a better chance to communicate.

Enjoying the summit? Don’t forget to to stop by our pop up store and grab some rare gear!

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Todays Agenda

7:30 Breakfast sponsored by Walgreens
8:00 Opening Remarks Terry Cato, Senior Director, Disease State Product Management

Recap Day 1 Wendy White, CEO, Siren Interactive
8:15 Session 4 Patient-Centered Benefit-Risk Assessment, Why It Matters to You

9:00 Session 4 Deep Dives

10:00 Break Sponsored by Shire

10:10 Innovations in Science Presentation Brief #3 Project Violet Founder, Jim Olson, PhD

10:30 Session 5 The Unstoppable Charity

11:15 Session 5 Deep Dives:

12:00 Networking Lunch Sponsored by Alexion Pharmaceuticals

1:00 – Session 6 Transition and Transformation Rare Disease in Adolescence and Adulthood

1:45 Session 7 Preparing for Success; Lobbying at the State and Federal level

2:30 Break Sponsored by Shire

2:40 Innovations in Science Presentation Brief #4 Immusoft Founder and CEO, Matthew Scholz, PhD

3:00 Session 8 Putting into Practice 21st Century Cures

3:30 Session 9 The Must-Have Collaborations for Successful Drug Development

5:00 Day Two – It’s a Wrap

5:00Margaritaville Networking Reception Lighthouse Courtyard Proudly Sponsored by Cincinnati Children’s Hospital

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