EveryLife Foundation: Webinar on Rare Disease Week on Capitol Hill to be Held on December 7th

November 18, 2016

You can play a role in educating the new Members of the House and Senate next year on the impact of rare disease in their communities by joining us for Rare Disease Week on Capitol Hill, to be held February 27 through March 2, 2017 in Washington, DC.

The week of events brings together rare disease community members from across the country to be educated on federal legislative issues, meet other advocates, and share their unique stories with legislators. All events are free for advocates, and registration will open in early January.

The EveryLife Foundation is now accepting applications for travel stipends, which will range from $300 to $1000 depending on the distance to be traveled. Patients, caregivers, and others in the rare disease community can apply online through December 18th. Please note that stipends are limited to one per family, and participation in the Legislative Conference and Lobby Day is required. All applicants will be notified in early January.

Anyone interested in attending Rare Disease Week on Capitol Hill is encouraged to join us for a webinar on Wednesday, December 7th, at 2pm ET for an overview of the events and the opportunity to ask questions. You can register HERE. The archived webinar will be available online within a few days for anyone unable to participate.

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