FDA Orphan Drug Designations in Q2 2019
July 1, 2019
Why Can’t People with RARE Diseases & Wheelchairs Fly Major Airlines?
Sign Open Letter to Improve Accessibility on Airlines As an organization founded to gather together advocates for […]Read more
Top 10 Takeaways from the 2023 RARE Health Equity Forum
Whether you attended in person or watched the live stream, we hope that you now have ideas […]Read more
Top 10 Takeaways from the 2023 RARE Advocacy Summit
Did you LEVEL UP while attending or live streaming the 2023 RARE Advocacy Summit? We certainly did! […]Read more
A Look Back and Forward for Health Equity at the 3rd Annual RARE Health Equity Forum
The 2023 RARE Health Equity Forum will be held in San Diego, California, September 18 and 19. […]Read more
Navigating the 2023 Global Genes RARE Advocacy Summit: A Choose-Your-Own-Adventure Extravaganza!
Welcome, brave adventurers, to the Global Genes RARE Advocacy Summit! Get ready to embark on a wild […]Read more
Why should RARE Disease dads attend the RARE Advocacy Summit during Week in Rare?
1. You will know you are not alone. As a rare disease dad myself (my son Lucas […]Read more
Collaboration Key Theme for RARE Advocacy Summit Sessions and Networking Opportunities
The 2023 RARE Advocacy Summit will be held in San Diego, California, September 19-21. by Sravanthi Meka […]Read more
Congratulations to the 2023 RARE Champions of Hope
The RARE Champions of Hope Awards celebrate, honor and recognize those in the rare disease community who […]Read more
The Fierce Urgency of Now — The 2023 NEXT Report
While fundraising is a key part of patient advocacy and drug development, time may be more important […]Read more