Findacure and Genetic Alliance UK are pleased to release the schedule for their upcoming workshop on setting up a patient group.
The workshop will take place on Friday 9th June, from 10:30am to 3:30pm at the National Council for Voluntary Organisations in London, and will provide an A-Z overview of setting up a patient group. The day will feature four talks on the most important aspects of setting up a patient group; good practice and operating policies, budgeting, building a strong team, and legal structures.
This workshop is free to attend for all rare disease patients, advocates and charities, and members of Genetic Alliance UK. Expenses will be reimbursed for all these individuals traveling within the UK.
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