Fourth Annual World PVNH Disorder Awareness Day Coming August 7th

July 28, 2015

PVNH stands for Periventricular Nodular Heterotopia–and the PVNH are asking you to wear pink and yellow on August 7th in support PVNH-affected families around the world! Families, friends, PVNH specialists and researchers, allies in the rare disease and medical worlds will join be joining in on the activities.

Everyone can follow the foundation and share photos of them wearing PVNH Day colours on Facebook on their PVNH Day decicated page or at PVNH Support & Awareness, on Twitter and Instagram @PVNHsupport or @PVNHday on Instagram.

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