Fourth Annual World PVNH Disorder Awareness Day Coming August 7th
July 28, 2015
PVNH stands for Periventricular Nodular Heterotopia–and the PVNH are asking you to wear pink and yellow on August 7th in support PVNH-affected families around the world! Families, friends, PVNH specialists and researchers, allies in the rare disease and medical worlds will join be joining in on the activities.
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