Blogs

Friday: Behind the Mystery Premieres Segment on Congenital Sucrase Isomaltase Deficiency

July 25, 2013

A pediatric gastroenterologist and her daughter will appear on this episode of Behind the Mystery: Rare and Genetic to discuss the rare disease, Congenital Sucrase-Isomaltase Deficiency. This rare disorder of the small intestines affects a person’s ability to digest certain sugars. Watch and learn if your child is at risk.

Behind the Mystery of: Rare and Genetic Diseases is a series produced with the intention of introducing and uniting patient, physician, and scientist with research, education and opportunity to revolutionize the way our health care system works for the Rare and Genetic Minority.

 Watch a sneak peek of this episode here!

By partnering with The Global Genes Project, The Balancing Act is able to provide available support to patients diagnosed with rare and genetic diseases, and to give hope with news of clinical trials and new treatments. Together, we can begin a new wave of advocacy and support for the rare community.

The Balancing Act supports and celebrates patient advocacy groups and industry leaders, who inspire connect and guide patients as they move forward through their journey towards treatments and a cure.

Make sure to tune in tomorrow at 7AM ET/PT to catch this exciting segment on CsiD.

Stay Connected

Sign up for updates straight to your inbox.

FacebookTwitterInstagramYoutube