Full Behind The Mystery Segment: The Trouble with Diagnosing a Rare Disease

Lifetime’s The Balancing Act premiered it’s newest segment of “Behind the Mystery” earlier this month with an educational story on AL Amyloidosis. View the segment below:

AL amyloidosis impacts different organs and many of its symptoms are also common to other diseases. Many patients, like Isabelle Lousada, spent several months—her health deteriorating– going from one doctor to another—trying to get a proper diagnosis. She was in her early thirties at the time. Doctors diagnosed her with Chronic Fatigue Syndrome. It wasn’t until months later that she was finally diagnosed with AL amyloidosis. Isabelle, now 52, joins us, to share her story. We also hear from an amyloidosis expert – Dr. Raymond Comenzo, Director, Blood Bank and Stem Cell Processing Laboratory and Director, John C. Davis Myeloma and Amyloid Program at Tufts Medical Center.