Girl Battles Trichohepatoenteric Syndrome
July 9, 2013
Imagine having a child with a real life medical mystery.
That’s the reality for one family in Post.
Brynne Bigham was born with Trichohepatoenteric Syndrome.
“At that point, she was the only one in the United States, that we knew of, that had it,” Brynne’s mom, Maggie Guthrie, said.
THE is a genetic bowel disorder that affects the absorbtion of food.
“She can eat different things, but it just goes right through her,” Guthrie said.
Brynne relies on a nutritional formual called TPN to survive.
“I have a G button and a port. Sometimes I have to get my port out. It hurts a little, but sometimes when I take my port out, I can go swimming,” Brynne said.
At just 4, Brynne’s been in and out of the hospital nearly 50 times.
Guthrie said support from friends, family and complete strangers has made Brynne’s stuggles a little easier.
To pay it forward, they started Brynne’s Smiles– a non-profit that helps families like theirs.
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