Jamie’s Dream Team Hosts Awareness Evening for World Rare Disease Day in Pennsylvania

February 23, 2013

Date of Event: 02/28/2013
Organization: Jamie’s Dream Team
Location: St. Raphael’s School’s – Multi-Purpose Room 1154 Chislett St Pittsburgh, PA 15206.

Jaime’s Dream Teamis hosting an awareness evening for over 7,000+ RARE diseases/disorders. Reservations are not necessary. However they would like to have an idea of how many people will be attending, please let Jamie’s Dream Team know you if be attending by Phone 412-377-3898 or [email protected].

Speakers at the event will include; Jamie Holmes, Founder of Jamie’s Dream Team, Thomas Exler, President of the Association for the Bladder Exstrophy Community (ABC),  and Adam Snow, Liver Transplant Recipient – Rare virus that destroyed his liver.

6:15 PM – Doors Open
7:00 PM – Introductions & Welcoming by George Weir, emcee
7:05 PM – Thomas Exler
7:20 PM – Bus 52 Video about Jamie’s Dream Team
7:30 PM – Jamie Holmes – Jamie’s Dream Team
7:45 PM – Adam Snow – Liver Transplant Recipient
8:00 PM – Other Presenters
8:15 PM – General Discussions
8:30 PM – Wrap up & Questions
9:00 PM – Event Ends

Other Information:
There will be music provided by DJ Tank.
Pizza, Snacks & Drinks will be provided for those who attend.
There will be plenty of time for open discussions.
Come to meet others dealing daily with rare diseases/disorders.
Wear jeans and/or jean clothing to show awareness for rare diseases/disorders.

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