Jeans for Rare Genes 2 Celebrating World Rare Disease Day in Staten Island

February 13, 2016

Submitted by Meghan Ortega

We’re BACK! In honor of Cowden Syndrome, Jeans for Rare Genes 2 promises to be even MORE fun than last year! We have returned to the Hilton Garden Inn, and brought back Charlie Balloons, and lots of great raffles. AND this year we have added Bob Jackson ( from Walt Disney World, as our main entertainment. We have spent a week in Disney the last 8 summers and have NEVER missed seeing Bob’s show. It’s the highlight of the week for all of us, and we are sure the children, and the more senior among us will ALL love Bob! We are hoping to surpass last year’s total of $12,000 and raise $20,000!

Date: 02/21/2016

Location: Hilton Garden Inn Staten Island, New York

Contact Meghan at [email protected] for more information

Stay Connected

Sign up for updates straight to your inbox.