Join in on RDLA’s February Legislative Webinar/Conference Call on Wednesday, February 1st: 1:00 pm to 2:00 pm EST.
Click ‘register’ below to RSVP and receive the call in number and webinar info:
REGISTER
Agenda:
- The FDA and the New Administration: Steven Grossman, HPS Group
- The ExPERT Act: Rachel Radomski, Associate Director, Patient Advocacy, Vertex Pharmaceuticals
- Capitol Hill Update: Max Bronstein, Chief Advocacy and Science Policy Officer, EveryLife Foundation for Rare Diseases
- Rare Disease Week on Capitol Hill 2017: Vignesh Ganapathy, Associate Director of Advocacy and Government Relations, EveryLife Foundation for Rare Diseases
Agenda is OPEN, please submit possible agenda items to [email protected]

Stay Connected
Sign up for updates straight to your inbox.