Date and Time: 2/23/2015 @ 11:00am-12:00am
Location: Great Hall, State House, Boston
Join MassBio, VHL Alliance, member companies, patient groups, patients and legislators to recognize Rare Disease Day.
Rare Disease Day calls attention to the public health issues associated with rare diseases, which affect nearly 30 million Americans and countless others around the world.
The Commonwealth joins a coalition of organizations recognizing the day, being coordinated by the National Organization for Rare Disorders (NORD), which includes patient organizations, professional societies, government agencies, medical researchers, pharmaceutical and biotechnology companies, and patients.
Please join us to recognize Rare Disease Day and the research being done in Massachusetts to treat and cure rare disease. Together, we can raise awareness of rare disease.
Pre-registration is not required, but is appreciated!
REGISTER ONLINE at https://www.eventbrite.com/e/
Interested in nominating a speaker for Rare Disease Day? Click here to fill out our nomination form.
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