Protecting Children with Rare & Undiagnosed Disease From Discrimination: A Survey
March 14, 2014
A new survey has been circulating that has the potential to provide information which may help protect children’s rights and eliminate discrimination against children with rare or undiagnosed diseases.
With recent news stories such as the case of Justina Pelletier of Boston Children’s Hospital, some feel a study on this particular topic can’t come soon enough.
Interested participants can visit https://www.surveymonkey.com/s/KCC7WGT to take the 5-10 minute survey for research purposes.
The survey was created by the newly formed Pediatric Justice Association.
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