Melissa Hogan, founder of Saving Case – an organization designed to help raise awareness of Hunter syndrome and engage people in the rare disease community – recently sat down with Rare Disease Report to list the 5 myths that can deter a parent from enrolling a child in a clinical trial.
The 5 myths are:
- My child’s doctor will let me know if there is a trial.
- My child won’t qualify.
- I can’t afford the travel costs for a clinical trial.
- I can’t figure out the logistics of making it happen in our family.
- A clinical trial is very risky.
To learn more about these myths, visit Melissa’s blog.

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