Rare Disease Report: Five Myths That Slow Down Clinical Trial Enrollment

October 10, 2014

Melissa Hogan, founder of Saving Case – an organization designed to help raise awareness of Hunter syndrome and engage people in the rare disease community – recently sat down with Rare Disease Report to list the 5 myths that can deter a parent from enrolling a child in a clinical trial.
The 5 myths are:

  1. My child’s doctor will let me know if there is a trial.
  2. My child won’t qualify.
  3. I can’t afford the travel costs for a clinical trial.
  4. I can’t figure out the logistics of making it happen in our family.
  5. A clinical trial is very risky.

 To learn more about these myths, visit Melissa’s blog.


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