RARE Recap: Cystinosis Research Network at RDLA’s 2015 Lobby Day

March 30, 2015

Christy Greeley of the Cystinosis Research Network participated in the Rare Disease Legislative Alliance Lobby Day as part of Rare Disease Week activities.

The team spent the day on Capitol Hill with other cystinosis advocates meeting with Senators and Representatives from their home districts, highlighting the need for bipartisan support of legislation to improve the development and approval of innovative treatments for patients with rare disease.


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