RARE Webinar: Introducing Dr. Petra Kaufmann, NCATS Office of Rare Disease Research

November 17, 2015



Please join us November 17, 2015 at 11:30 PST/2:30 EST, as we host a special webinar formally introducing you to Dr. Petra Kaufmann, the Director of both the Office of Rare Diseases Research and Division of Clinical Innovation, NCATS.

The purpose of this Webinar is to provide the rare disease community with the opportunity to hear directly from Dr. Kaufmann about her new role, her plans for the Office and most importantly, how she wants to engage with the rare disease community. Questions will be taken from attendees participating in the Webinar and fielded by the Moderator, Daniel Levine, Producer of Global Genes’ RARECast podcast.

This webinar is free to attend, and will include important information that all rare disease stakeholders will be interested to learn more about. If you are unable to attend the live webinar register anyways and you will receive a link to the recorded content.


petra_kaufmannDr. Petra Kaufmann

Petra Kaufmann is the director of both the Office of Rare Diseases Research and the Division of Clinical Innovation. Her work includes overseeing NCATS’ Rare Diseases Clinical Research Network, Genetic and Rare Diseases Information Center, and Clinical and Translational Science Awards Program as well as the NIH/NCATS Global Rare Diseases Patient Registry Data Repository/GRDR® program. Kaufmann focuses on engaging a broad range of stakeholders to accelerate translation from discovery to health benefits through use of innovative methods and tools in translational research and training.  Click here to read more.

Danny_LevineDaniel Levine, Founder & Principal, Levine Media Group

Daniel Levine is an award-winning business journalist who has reported on the life sciences, economic development, and business policy issues throughout his 25-year career. Since 2011, he has served as the lead editor and writer of Burrill Media’s acclaimed annual book on the biotech industry and hosts The Burrill Report’s weekly podcast. His work has appeared in The New York Times, The Industry Standard,, and other national publications.

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