Blogs

RDLA’s April Legislative Webinar/Conference Call Scheduled for April 20th

April 6, 2016

Wednesday, April 20th: 1:00 pm to 2:00 pm EST 

Click ‘register’ below to RSVP and receive the call in number and webinar info:

Screen Shot 2016-04-06 at 9.53.23 AM

Agenda:

  1. Advancing Standards in Regenerative Medicine Act: Samantha Warren, Senior Policy Advisor to Representative Bill Foster (IL-11)
  2. AB 2752 (California) Continuity of Care: Jerry Jaffe, Public Policy Director, California Chronic Care Coalition
  3. Newborn Screening & Capitol Hill Update: Max Bronstein, Senior Director of Advocacy and Science Policy, EveryLife Foundation

 

Agenda is OPEN, please submit possible agenda items to [email protected]

Once a month RDLA convenes in person and/or over the phone to discuss legislation and developments that affect the rare disease community. The meeting/conference calls are essentially a clearing house for legislation and participation does not imply support for any of the policy proposals or legislation that are discussed or promoted.

Stay Connected

Sign up for updates straight to your inbox.

FacebookTwitterInstagramYoutube