Wednesday, April 19th: 2:30 pm to 3:30 pm EST
440 First Street Northwest, Lobby-level Conference Room
Washington, DC 20001
Click ‘register’ below to RSVP and receive the call in number and webinar info:
Agenda:
- Health Care Reform: Katie Allen, Senior Director of Government Affairs, Horizon Government Affairs
- Newborn Screening in Florida: Vignesh Ganapathy, Associate Director of Advocacy and Government Relations, EveryLife Foundation for Rare Diseases
Agenda is OPEN, please submit possible agenda items to [email protected]
Once a month RDLA convenes in person and/or over the phone to discuss legislation and developments that affect the rare disease community. The meeting/conference calls are essentially a clearing house for legislation and participation does not imply support for any of the policy proposals or legislation that are discussed or promoted.
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