Reminder: Rare Registries Webinar Today

October 23, 2013

Just a reminder that Global Genes | RARE Project will be hosting a webinar on Understanding Rare Disease Registries today. Have you registered yet?

Part 2, October 23, 2013  

11:00 am Pacific Time

Register today – space is limited!

Part Two will include a demonstration of available registry platforms and will explore selected topics in greater depth, including questions or issues submitted by participants during Part One of the webinar series.

Panelists include:

  • Dr. Felix Gyi and Lauri Carlile, Chesapeake IRB
  • Liz Donohue, Coordination of Rare Diseases at Sanford (CoRDS)
  • Vanessa Rangel Miller, Patient Crossroads
  • Dr. Abbie Moore, Genetic Alliance
  • Sally Okun, PatientsLikeMe

Part One of this popular webinar series is available for viewing by clicking here. We encourage interested viewers to register and join the discussion.

A special thank you to our content partner, GlobalEpi Research, for their help in coordinating this important discussion.

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