Save the Date: 2016 Annual Rare Disease Scientific Workshop on “Evaluating Models to rdswProvide Early Access for Rare Disease Patients”

April 27, 2016

On September 13th, the EveryLife Foundation will host the eighth annual Rare Disease Scientific Workshop at the Willard Intercontinental Hotel in Washington, DC.

This year’s workshop will highlight recent case studies for companies looking to provide patients early access to experimental therapies.  Current methodologies will be discussed and evaluated with the goal of identifying best practices and useful ideas to create a set of standard approaches to early access.  Representatives from various rare disease stakeholder groups including industry, government, and patient advocacy organizations will have the opportunity to engage with one another in this interactive day-long forum.

The Public Policy Working Group of the Foundation’s Community Congressis assisting in the planning of the workshop.

If you are interested in sponsoring this event, please email EveryLife’s Chief Development Officer, Carol Kennedy, at [email protected].  For speaking opportunities and policy information, please contact their Senior Director of Advocacy and Science Policy, Max Bronstein, at [email protected].  Registration for this event opens on June 13th.

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