Global Genes
  • Connect

    Connect and get an overview of what the Global Genes community has to offer, from events to patient services.

    • Patient Services

      Free, personalized service for patients, caregivers, and healthcare providers

    • Join Our Community

      Login or request an account to join the Global Genes community in the RARE Portal

    • Events

      Browse upcoming Global Genes hosted events and sign up.

    • Community Events

      Explore Events hosted by communities, individuals, and other outside organizations

  • Learn

    Learn, search and explore the media and resources hub.

    • Search RARE List

      Search for a particular rare disease and more.

    • Know Your Family History
    • Podcasts

      Listen to the podcast focused on the intersection of rare disease, business, science, and policy.

    • Clinical Trials Hub

      Learn about and participate in upcoming clinical trials

    • RARE Daily

      The official blog of Global Genes

    • Learn – RARE University
    • RARE Disease Facts
  • Participate

    Share Your Story

    • World Rare Disease Day
    • RARE-X
    • Xcelerate RARE Open Science Data Challenge
    • Grant Opportunities

      Impact Grant Opportunities for the rare patient community

    • RARE Compassion Program

      an opportunity for both patients and medical students

    • Donate Now
    • Sponsorship Opportunities
  • About

    Learn about Global Genes

    • Team and Advisory Boards
    • Global Advocacy Alliance

      a members only, global community of non-profit organizations and support groups

    • RARE Corporate Alliance

      a partnership committed to improving the lives of people with rare diseases.

    • Sponsorship Opportunities
    • Health Equity

      Learn about our commitment to health equity

    • Career Opportunities

      Find the right career opportunities

    • Press

      Global Genes’ latest press releases

  • Portal
  • Contact Us
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Global Genes
  • Connect
    • Events
    • Community Events
    • Global Advocacy Alliance Events
    • RARE Concierge – Patient Services
    • RARE Portal
  • Participate
    • Donate Now
    • Sponsorship Opportunities
    • Grant Opportunities
    • RARE Compassion Program
  • Learn
    • Know Your Family History
    • RARE List
    • RARE Daily
    • Podcasts
    • RARE University
  • Contact Us
  • Portal
  • About Us
    • Press
    • Career Opportunities
    • Health Equity
    • RARE Corporate Alliance
    • Global Advocacy Alliance
  • Privacy Policy
  • Global Genes Terms Of Use
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28 Argonaut, Suite 150
Aliso Viejo, CA 92656
Phone: (+1) 949-248-RARE (7273)

Global Genes 501c3 – EIN: 26-3331487