Connect and get an overview of what the Global Genes community has to offer, from events to patient services.
Free, personalized service for patients, caregivers, and healthcare providers
Login or request an account to join the Global Genes community in the RARE Portal
Browse upcoming Global Genes hosted events and sign up.
Explore Events hosted by communities, individuals, and other outside organizations
Learn, search and explore the media and resources hub.
Search for a particular rare disease and more.
Listen to the podcast focused on the intersection of rare disease, business, science, and policy.
Learn about and participate in upcoming clinical trials
The official blog of Global Genes
Share Your Story
Impact Grant Opportunities for the rare patient community
an opportunity for both patients and medical students
Learn about Global Genes
a members only, global community of non-profit organizations and support groups
a partnership committed to improving the lives of people with rare diseases.
Learn about our commitment to health equity
Find the right career opportunities
Global Genes’ latest press releases
December 3, 2018
Patience is not always a virtue. In the world of rare disease, drug developers and patient advocates […]
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