What if a Cure for Tay-Sachs was Just 75 Miles From the Finish Line?

May 1, 2014

“Help me to raise awareness and funds as I participate in The Million Dollar Bike Ride sponsored by The Penn Medicine Center for Orphan Disease Research and Therapy (CODRT). I am committed to riding 75 miles with the memory of many friends and families in my heart. Your support is greatly needed and deeply appreciated.”
-Levi GershkowitzThe event is happening this weekend, Saturday, May 3, 2014.



Tay-Sachs, Sandhoff and GM1 are rare genetic disorders (also known as lysosomal storage disorders) that affect the central nervous system. Infants and children born with these diseases appear healthy at birth but progressively lose all motor function and typically die between five and 10 years old. The Late Onset forms of Tay-Sachs and Sandhoff diseases are progressively debilitating but not typically fatal. Canavan disease is a rare genetic disease (also known as a leukodystrophy) that causes the progressive deterioration of all motor function.

There is no cure or treatment for any of these rare genetic diseases. However, research is closer, more than ever, to developing treatments and even potential cures. In order to speed the way for treatments, funds must be raised to subsidize the outstanding work being conducted worldwide. After nearly 60 years NTSAD remains one of the oldest patient advocacy organizations committed to caring for families and finding a cure.

What if a cure for Tay-Sachs was just 75 miles from the finish line?
Every dollar you contribute will go directly to Tay-Sachs research and will be matched by the Center for Orphan Disease Research & Therapy at the University of Pennsylvania.
  • Support Tay-Sachs Research
  • Dollar for Dollar Match on a 100% Tax Deductible Donation
  • 25 million people in the US suffer from orphan diseases
  • Help Spread Awareness

Please consider making a contribution and learning more by clicking here.

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