We at Global Genes are grateful…
- For the opportunity to spread awareness
- For the ability to help patients connect
- For the pathways to change policy made by those in the rare community
- To the parents who fight tirelessly for their children’s right to a healthier life
- And for the chance to work professionally in a field that we are truly passionate about
Nicole Boice
President and Founder
“I am grateful for this moment. I am grateful for family and friends. I am grateful for the sunrise that starts each day.”
Andrea Epstein
Executive Director
“I am most grateful for my incredible family– they are my rock and my everything. Good health, shared laughter and friendship too. And I’m grateful to have joined the amazing Global Genes team this year– and to be afforded the wonderful opportunity to impact those who most need hope both near and far.”
Katie Mastro
Program Manager
“I am thankful for my freedom, modern medicine (can you imagine living in the Middle Ages?), my health, and my family and friends. And that’s just the tip of the iceberg!”
Amy Grover
Director of Operations
“So many things! I am grateful for my family both near and far. I am thankful for technology that keeps us forever close. I am thankful for our freedom and for those that sacrifice so much for us to keep it. And I am especially thankful for the many blessings bestowed upon me I can’t begin to list.”
Kathy O’Connor
Manager of Development
“I am so grateful for the many moments that make my world complete!
So thankful for the little things, like the sound of my youngest daughter belting out a Taylor Swift tune in the bathtub, the muddy cleats and smelly shin guards thrown in my garage, and the sound of my son’s car pulling into the driveway. Grateful for and humbled by the really big things, like being able to work with so many amazing people through Global Genes and be given the chance to try and make a difference for a truly deserving and inspiring rare disease community!”
Ashley Girtman
Program Manager
“I am grateful for my husband, family, friends, and even my dog! They all helped make me who I am today and I am very thankful for each and every one of them. I am grateful to wake up everyday and work at a place where I can help make a difference. I am grateful for the awesome team I work with; they truly have become like a second family to me.”
Carrie Ostrea
Manager of Advocacy
“I am thankful for my amazing husband who after almost two decades of marriage still makes me laugh and makes me feel loved. My two older kids, who keep me on my toes and show me how wonderful the little things in life can be. My youngest, Hannah, who even though I miss terribly each and every day, continues to inspire this passion in my heart to help other rare kids like her.
This rare disease community, because I am able to work and share with such tremendous and awe-inspiring people who ‘get it.’ For technology, to keep me connected with old friends and new, when life seems to go by so fast and we are spread so far apart, I feel like we still get to share parts of our lives with each other.”
Ilana Jacqueline
Managing Editor of the Blog
“I’m so grateful to have a job where I can make a difference and connect with other patients. I’m also grateful for my family and friends who have been so supportive of the adjustments I’ve had to make in my life because of my own rare disease. I’m happy to not be in the hospital over the holidays, and grateful that I can be with the one who loves me most– my poodle.”
