Wrapping Up Day 1 of the 2016 Global Genes Rare Patient Advocacy Summit

September 23, 2016

“The game changers in #raredisease are the people in this room & millions around the world like you” @peter_pcg #2016GGSummit

The biggest holiday in patient advocacy is here! And day one of the 2016 Global Genes Patient Advocacy Summit brought some powerful speakers, insightful audiences and a sense of community that’s hard to come by when you’re a rare patient, caregiver or clinician.

We took on the topics of care and support, the patient’s role in drug discovery and pre-clinical tools, and what you need to build as a disease community. Our presenters took questions from the participants and others told their personal stories.

Couldn’t attend this year? It was a good thing you could watch the entire day unfold through where livestreaming of the day’s events took place. Today, the second day of the summit, will also be streamed through the same website for your viewing pleasure!

Let’s take a look at what some people were saying about this year’s event so far:



Ready for day two? We’ll see you there!

Stay Connected

Sign up for updates straight to your inbox.