August 5, 2019
Rare Reading Before You Head to the 2019 RARE Patient Advocacy Summit
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July 8, 2019
U.K. Rare Disease Group Gets Boost from Lottery Fund
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June 19, 2019
Minnesota Governor Signs Bill Creating Rare Disease Advisory Council
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June 17, 2019
X4 Pharma and Invitae to Provide No-Cost Genetic Testing to Patients Suspected of Having SCN and WHIM
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June 3, 2019
Medical Students Learn About Zebras Through Patient Matching Program
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May 1, 2019
Creating a Viral Vector for Fundraising
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April 19, 2019
A Young Rare Disease Advocate Discusses Life with an Undiagnosed Condition
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March 28, 2019
Seeing Sickle Cell as a Blood Disease
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March 6, 2019
FDA to Hold Public Meeting on the Impact of Rare Diseases
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March 6, 2019
How Maria Voermans Found Her Calling
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