September 17, 2019
Rare Disease Diagnosis Leads to Awareness Day and Contagious Outlook on Life
Read More
September 6, 2019
Susannah Cahalan and her Month of Madness
Read More
September 4, 2019
Global Genes Joins HelpCureHD to Raise Awareness for Huntington Disease
Read More
August 5, 2019
Rare Reading Before You Head to the 2019 RARE Patient Advocacy Summit
Read More
July 8, 2019
U.K. Rare Disease Group Gets Boost from Lottery Fund
Read More
June 19, 2019
Minnesota Governor Signs Bill Creating Rare Disease Advisory Council
Read More
June 17, 2019
X4 Pharma and Invitae to Provide No-Cost Genetic Testing to Patients Suspected of Having SCN and WHIM
Read More
June 3, 2019
Medical Students Learn About Zebras Through Patient Matching Program
Read More
May 1, 2019
Creating a Viral Vector for Fundraising
Read More
April 19, 2019
A Young Rare Disease Advocate Discusses Life with an Undiagnosed Condition
Read More
Load More
X