December 28, 2018
Rare Leader: Christine Waggoner, President and Co-Founder, Cure GM1 Foundation
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December 20, 2018
Rare Leader: Brad Crittenden, Executive Director, Canadian Association of Pompe
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December 13, 2018
Gilbert Family Foundation Announces $12 Million Gene Therapy Initiative in NF1
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December 13, 2018
Rare Leader: Deanna Portero, Executive Director, Fibrous Dysplasia Foundation
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December 12, 2018
Georgia Ehlers-Danlos Syndrome Network Partners with Backpack Health to Provide Health Manageme...
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December 10, 2018
International Research Collaboration to Focus on Leiomyosarcomas
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December 6, 2018
Rare Leader: Beth McGinn, Co-founder and Executive Director, A Cure for Ellie
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November 29, 2018
Rare Leader: Sharon Rose Nissley, Founder and Executive Director, Klippel-Feil Syndrome Freedom...
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November 23, 2018
Matching Volunteers to Rare Disease Organizations in Need
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November 21, 2018
Rare Leader: Vanessa Vogel-Farley Executive Director Dup15q Alliance
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