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A total of 21 posts are filed under Get Involved
Relapsing Polychondritis Awareness and Support Foundation Announces New Study with NIH
The Relapsing Polychondritis Awareness and Support Foundation, Inc. (RPASF) is extremely pleased to be able to make the following… Continue Reading
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2016 RARE Patient Advocacy Summit to be Streamed LIVE on 9/22-9/23
Every parent, patient, caregiver, advocate and clinician has the right to learn how to best equip themselves against the confusion and… Continue Reading
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NTSAD’s Sixth Annual Day of Hope!
The day where hope knows no boundaries. Join NTSAD to rally and raise funds for research! We’ve raised over $168,000 since 2011. Let’s… Continue Reading
Rare Artist
EveryLife Foundation Accepting Entries for 8th Annual Rare Artist Contest
The EveryLife Foundation for Rare Diseases is pleased to announce the 8th annual Rare Artist contest, which celebrates the unique talents of… Continue Reading
Rare Disease Report’s “Rare Disease Heroes” Nominations
This award was established to recognize hospitals that are dedicated to changing the way we manage rare conditions. Whether it is by… Continue Reading
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Register Now For the 2016 National Health Research Forum
Research!America’s National Health Research Forum is designed to take an unvarnished look at issues that are sometimes controversial,… Continue Reading
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A New Drug for Acomegaly Patients? MPowered Offers Oral Alternative
  CLINICAL TRIAL OF AN ORAL ALTERNATIVE If approved as the first oral somatostatin analog treatment for acomegaly, octreotide capsules may… Continue Reading

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