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Get Involved

A total of 23 posts are filed under Get Involved
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Support in a Shoebox? Get Your Entries in Today!
The RareX Conference is taking place next week in Cape Town, South Africa. Rare Diseases of South Africa knows that many organizations… Continue Reading
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Imagine and Believe: An Evening to Benefit NTSAD
Join us on Thursday, November 10th, 2016 for this event. This year we honor Karen Aiach, Founder and CEO of Lysogene, a company that works… Continue Reading
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Relapsing Polychondritis Awareness and Support Foundation Announces New Study with NIH
The Relapsing Polychondritis Awareness and Support Foundation, Inc. (RPASF) is extremely pleased to be able to make the following… Continue Reading
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2016 RARE Patient Advocacy Summit to be Streamed LIVE on 9/22-9/23
Every parent, patient, caregiver, advocate and clinician has the right to learn how to best equip themselves against the confusion and… Continue Reading
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NTSAD’s Sixth Annual Day of Hope!
The day where hope knows no boundaries. Join NTSAD to rally and raise funds for research! We’ve raised over $168,000 since 2011. Let’s… Continue Reading
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EveryLife Foundation Accepting Entries for 8th Annual Rare Artist Contest
The EveryLife Foundation for Rare Diseases is pleased to announce the 8th annual Rare Artist contest, which celebrates the unique talents of… Continue Reading
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Rare Disease Report’s “Rare Disease Heroes” Nominations
This award was established to recognize hospitals that are dedicated to changing the way we manage rare conditions. Whether it is by… Continue Reading