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Get Involved

A total of 35 posts are filed under Get Involved
Global Genes® and Festival of Children Foundation Announce First RARE Carousel of Possible Dreams
Global Genes, a leading rare disease patient advocacy organization, and Festival of Children Foundation are proud to announce the first-ever… Continue Reading
Rare Disease Day Roundup: What’s Happening in Your Neighborhood?
Cheryl Gavin is hosting Supercuts Supports Rare Disease Day. Over 80 local Supercuts in Massachusetts and New Hampshire will be wearing… Continue Reading
Alagille Syndrome Alliance Accepting Applications for Alaina Kaitlyn Hahn Celebratory Scholarship
The Alagille Syndrome Alliance (ALGSA), a nonprofit organization dedicated to furthering awareness and understanding of Alagille Syndrome… Continue Reading
Join RDLA’s February 1st Legislative Webinar/Conference Call
Join in on RDLA’s February Legislative Webinar/Conference Call on Wednesday, February 1st: 1:00 pm to 2:00 pm EST.  Click… Continue Reading
Rare Disease Day Roundup: What’s Happening in Your Neighborhood?
Dewey Marino from San Diego, California wrote to inform us about a golf tournament taking place on November 25th to benefit the DDX3X… Continue Reading
IPPF Research Grant Program Now Calling for Applicants
Organization: International Pemphigus & Pemphigoid Foundation Submitted by: Marc Yale The International Pemphigus and Pemphigoid Foundation… Continue Reading
‘Engaging your Community for Fundraising’ Workshop By Findacure
As part of Findacure’s training series for small rare disease patient groups, our next workshop will focus on the topic of community… Continue Reading
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