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Get Involved

A total of 27 posts are filed under Get Involved
Vertex Announces New Scholarship Contest, Ready to Accept Submissions
Vertex Pharmaceuticals has announced the launch of “All In for CF Scholarship,” a new program for patients with CF and/or their family… Continue Reading
EveryLife Foundation: Webinar on Rare Disease Week on Capitol Hill to be Held on December 7th
You can play a role in educating the new Members of the House and Senate next year on the impact of rare disease in their communities by… Continue Reading
First Annual SYNGAP1 Golf Classic and Silent Auction
Bridge the Gap – SYNGAP Education and Research Foundation (501(c) 3) is a non-profit organization whose mission is to serve, educate, and… Continue Reading
Global Genes Needs YOU for New Project! Help Answer Our Survey!
We have an important request to test a project our team is working on, and we would really like your input.  If you have any questions on… Continue Reading
Support in a Shoebox? Get Your Entries in Today!
The RareX Conference is taking place next week in Cape Town, South Africa. Rare Diseases of South Africa knows that many organizations… Continue Reading
Imagine and Believe: An Evening to Benefit NTSAD
Join us on Thursday, November 10th, 2016 for this event. This year we honor Karen Aiach, Founder and CEO of Lysogene, a company that works… Continue Reading
Relapsing Polychondritis Awareness and Support Foundation Announces New Study with NIH
The Relapsing Polychondritis Awareness and Support Foundation, Inc. (RPASF) is extremely pleased to be able to make the following… Continue Reading

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