February 8, 2019
Upcoming Events on the Rare Calendar
June 28, 2018
Global Genes® to Host 7th Annual Rare Patient Advocacy Summit October 3-4
June 4, 2018
FDA to Hold Patient-Focused Drug Development Meeting on Chronic Pain
March 22, 2018
Rare Leader: Annie Achee, President of the National Leiomyosarcoma Foundation
June 22, 2017
2017 Rare Artist Contest Now Accepting Entries – Submit Your Work Today!
May 31, 2017
Sanofi Genzyme Announces Launch of 7th Annual Patient Advocacy Leadership Awards
May 22, 2017
Action Alert! Urge your Legislator to Support the OPEN ACT!
May 9, 2017
RDLA’s May Legislative Webinar and In-Person Meeting
April 19, 2017
Invitae Creating Patient Insights Network (PIN) to Help Share Health Data
April 17, 2017
RDLA’s April Legislative Webinar/Conference Call
April 13, 2017
Register Now for the Cell and Gene Exchange!
April 3, 2017
Call to Action: Endorsing Scott Gottlieb MD as Commissioner of Food and Drug…