February 8, 2019
Upcoming Events on the Rare Calendar
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June 28, 2018
Global Genes® to Host 7th Annual Rare Patient Advocacy Summit October 3-4
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June 4, 2018
FDA to Hold Patient-Focused Drug Development Meeting on Chronic Pain
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March 22, 2018
Rare Leader: Annie Achee, President of the National Leiomyosarcoma Foundation 
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June 22, 2017
2017 Rare Artist Contest Now Accepting Entries – Submit Your Work Today!
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May 31, 2017
Sanofi Genzyme Announces Launch of 7th Annual Patient Advocacy Leadership Awards
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May 22, 2017
Action Alert! Urge your Legislator to Support the OPEN ACT!
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May 9, 2017
RDLA’s May Legislative Webinar and In-Person Meeting
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April 19, 2017
Invitae Creating Patient Insights Network (PIN) to Help Share Health Data
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April 17, 2017
RDLA’s April Legislative Webinar/Conference Call
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April 13, 2017
Register Now for the Cell and Gene Exchange!
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April 3, 2017
Call to Action: Endorsing Scott Gottlieb MD as Commissioner of Food and Drug…
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