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Global Genes

A total of 182 posts are filed under Global Genes
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Introducing 2016 Speaker Kent Thoelke: Leveraging Big Data to Grow Clinical Trials
As part of our 2016 Patient Advocacy Summit, we’re excited to have Kent Thoelke, Executive Vice President, Scientific & Medical Affairs,… Continue Reading
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2016 RARE Patient Advocacy Summit to be Streamed LIVE on 9/22-9/23
Every parent, patient, caregiver, advocate and clinician has the right to learn how to best equip themselves against the confusion and… Continue Reading
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Meet The Global Genes 2016 Rare Champion of Hope Honorees
The world of rare disease is a small one in comparison to the rest of the medical community’s—but it’s filled with many heroes. So it… Continue Reading
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It Is Your Last Chance to Register!
Don’t miss your LAST CHANCE to register for our 5th Annual RARE Patient Advocacy Summit! Using feedback from patient advocates, board… Continue Reading
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Global Genes Announces Actors, Pop Stars, and Special Performances For the Fifth Annual Tribute to Champions of Hope
Finalists from NBC’s The Voice, Ed O’Neill, Taylor Hicks, Madison McLaughlin, and More Support Rare Disease ALISO VIEJO, Calif. —… Continue Reading
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Global Genes Provides Over $100,000 in Scholarships
Global Genes, the leading global advocacy non-profit organization for patients and families fighting rare and genetic diseases, today… Continue Reading
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Register for Today’s Webinar: Effectively Communicate with Health Care Providers
Do you ever find it difficult to inform your physician about your rare disease–from symptoms to research to finding support to cope with… Continue Reading
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