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Global Genes

A total of 336 posts are filed under Global Genes
The What and the How
I tend to multi-task, thanks to a little help with some modest technology. During any given day I will have a long to-do list on my computer… Continue Reading
An Elite Runner Makes a Cross-Canada Trek for His Son and Rare Disease
This summer, elite runner Dave Proctor set out on a 4,500-mile run across Canada to break a Guinness World Record and raise $1 million to… Continue Reading
Teaching Others to See
Hours after Rachel Callander’s daughter Evie was born, the infant was having difficulty eating and began choking. The medical staff at the… Continue Reading
How Rare Disease Advocates Can Get the Most out of Collaborations
Collaborations play a critical role in advancing potential treatments for a rare disease and can take many forms. In some cases, they may… Continue Reading
Ferris Bueller and the Cost of Pivotal Clinical Trials
It turns out asking what a pivotal phase 3 clinical trial costs is a little like asking, “What does a car cost?” The answer will depend… Continue Reading
Introducing Voices from the Rare Community
  RARE Daily is starting a new feature called Voices from the Rare Community and we’d like you to be a part of this. From time to time… Continue Reading
Establishing Clinical Standards for a Rare Disease
Seeking treatment for a rare disease can be complicated by the poor understanding clinicians may have of a given condition and variations in… Continue Reading
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