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Global Genes

A total of 229 posts are filed under Global Genes
Global Genes® to Host 6th Annual Rare Patient Advocacy Summit September 14 – 15, 2017, Hotel Irvine, Irvine, California
On September 14-15, 2017, more than 700 rare disease stakeholders from around the globe will gather at Hotel Irvine in Irvine,… Continue Reading
Global Genes Rare Disease Patient Impact Grant Goes Towards The LHON Genealogy Project
As a 11778G>A mutation carrier, Lissa Poincenot, founder of, is forever connected to the Leber hereditary optic neuropathy (LHON)… Continue Reading
Global Genes® to Convene RARE Partnering and Investor Forum to Accelerate Drug Development for Rare Diseases
[Aliso Viejo, CA] May 19, 2017 – Global Genes®, a leading rare disease patient advocacy organization, will host the inaugural RARE… Continue Reading
Biotech Leader and Rare Disease Champion, Henri Termeer, Passes at Age 71
This last week, the Rare Disease Community lost a true Champion of Hope.  The announcement of Henri Termeer’s passing was met with shock… Continue Reading
Celebrate Family Through the #HugsForHope Frame and Hashtag
Join the Rare Disease Community this Mother’s Day through Father’s Day in celebrating RARE Moments with family! Share your favorite… Continue Reading
Please Nominate Your RARE Champion of Hope!
Honor those who give HOPE. Global Genes RARE Champion of Hope Awards provide an opportunity to recognize individuals who are true agents of… Continue Reading
Global Genes Founder, Nicole Boice, Featured in LOCALE Magazine
Nicole Boice Shares What It’s Like to Create an Organization From the Ground Up Written By: Iyana Edouard Photographed By: Adam… Continue Reading