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Global Genes

A total of 209 posts are filed under Global Genes
The Quest for Unity On World Rare Disease Day: Disability Dudes Interview Multiple Organizations in New Podcast
In the rare disease community, strength is in unity and supporting one another. February 28th is globally recognized as Rare Disease Day.… Continue Reading
Global Genes® and Horizon Pharma plc Partner to Offer Nephropathic Cystinosis Scholarships
Scholarships Provide Opportunity for People with Nephropathic Cystinosis to Pursue Educational and Career Goals. Global Genes® and Horizon… Continue Reading
Celebrate World Rare Disease Day by Changing Your Profile Picture
Step 1. Upload a photo Step 2. Pick a frame  Step 3. Resize image  Step 4. Preview and save your photo Step 5. Save your photo by… Continue Reading
Join Us for the Denim and Diamonds Fashion Show
February 28th, 2017 6:30-9:30 PM @ Pelican Hill Resort 22701 S Pelican Hill RD, Newport Coast, CA, 92657 Join us for the Denim and Diamonds… Continue Reading
New Toolkits by Global Genes Educate Patients on Gene Therapy and Health Insurance
Over the past few years Global Genes has been providing patients with easy to understand guides or “toolkits” on everything from… Continue Reading
Rare Disease Day Roundup: What’s Happening in Your Neighborhood?
Dewey Marino from San Diego, California wrote to inform us about a golf tournament taking place on November 25th to benefit the DDX3X… Continue Reading
Global Genes and Horizon Pharma Introduce Scholarship for Nephropathic Cystinosis Patients
Patients with rare diseases miss out on many things, but their education shouldn’t be one of them. That’s why Horizon Pharmaceuticals… Continue Reading

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