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Global Genes

A total of 241 posts are filed under Global Genes
Why Patient-Centred Outcomes Are Critical to Rare Disease Drug Trials
  Despite growing acceptance that patients have the clearest view of the health outcomes that matter, drugs to treat rare diseases often… Continue Reading
Global Genes to Host RARE in the SQUARE January 8-10, 2018, During J.P. Morgan Healthcare Conference
Global Genes® to Host RARE in the SQUARE January 8-10, 2018, During J.P. Morgan Healthcare Conference RARE Disease Innovators, Investors,… Continue Reading
Give HOPE for the Holidays
  We welcome the holiday season, a time for family and friends, joy and HOPE. As 2017 comes to a close, we celebrate RARE families and give… Continue Reading
What the FDA’s New Framework Means for Regenerative Therapies
Earlier this month, the U.S. Food and Drug Administration announced a comprehensive policy framework for the development and oversight of… Continue Reading
A Christmas Story
  Caroline Harding decided to throw a Christmas party. She wanted to do it for the many young people, who like her son Columbus, had a rare… Continue Reading
On Giving Tuesday, Global Genes Seeks Support for Its Rare Patient Impact Grant Program
Beginning with Giving Tuesday, an international day that celebrates the season of giving, Global Genes is seeking support for its Rare… Continue Reading
Measuring the Value of Therapies for Ultra-Rare Diseases
  The pricing of drugs is characterized by a tension between providing incentives to drug companies to invest in the development of… Continue Reading
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