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Global Genes

A total of 232 posts are filed under Global Genes
New Investment Boosts Rare Disease Drug Accelerator
  Cydan, an orphan drug accelerator focused on developing therapies for rare genetic diseases, recently completed a $34 million financing… Continue Reading
Rare Partnering and Investor Forum – 9/14/2017 in Irvine, CA
Here’s all the info on our first ever Rare Disease Partnering Event! In this “Shark Tank” styled event we’ll welcome new ideas to… Continue Reading
Horizon Pharma plc Partners with Global Genes® to Unite the Rare Disease Community at the BIO International Convention
Text the Word “RARE” to 565-12 to Generate a Donation to Global Genes DUBLIN, Ireland, June 20, 2017 (GLOBE NEWSWIRE) — Horizon… Continue Reading
RARE Webinar: Make Sense of Your Dollars | Tuesday, June 13, 2017 at 10:00am PST
Join us June 1, 2017 for our new RARE Webinar, Make Sense of Your Dollars. If you cannot attend the webinar at its designated time, be sure… Continue Reading
Global Genes® to Host 6th Annual Rare Patient Advocacy Summit September 14 – 15, 2017, Hotel Irvine, Irvine, California
On September 14-15, 2017, more than 700 rare disease stakeholders from around the globe will gather at Hotel Irvine in Irvine,… Continue Reading
Global Genes Rare Disease Patient Impact Grant Goes Towards The LHON Genealogy Project
As a 11778G>A mutation carrier, Lissa Poincenot, founder of, is forever connected to the Leber hereditary optic neuropathy (LHON)… Continue Reading
Global Genes® to Convene RARE Partnering and Investor Forum to Accelerate Drug Development for Rare Diseases
[Aliso Viejo, CA] May 19, 2017 – Global Genes®, a leading rare disease patient advocacy organization, will host the inaugural RARE… Continue Reading