9.15.2016 As part of our 2016 Patient Advocacy Summit, we’re excited to have Kent Thoelke, Executive Vice President, Scientific & Medical Affairs,… Continue Reading
9.13.2016 Every parent, patient, caregiver, advocate and clinician has the right to learn how to best equip themselves against the confusion and… Continue Reading
9.8.2016 The world of rare disease is a small one in comparison to the rest of the medical community’s—but it’s filled with many heroes. So it… Continue Reading
8.11.2016 Global Genes, the leading global advocacy non-profit organization for patients and families fighting rare and genetic diseases, today… Continue Reading
8.8.2016 Do you ever find it difficult to inform your physician about your rare disease–from symptoms to research to finding support to cope with… Continue Reading
7.19.2016 Over 350 individuals and organizations worldwide were nominated by their peers for a RARE Champion of Hope award for their notable efforts… Continue Reading
Global Genes Hosts 5th Annual Rare Patient Advocacy Summit and Tribute to Champions of Hope, Presented by PRA Health Sciences.
6.20.2016 September 22 to 24, 2016, Hyatt Regency Resort and Spa, Huntington Beach, California. The annual blue carpet event following the two-day… Continue Reading