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Global Genes Events

A total of 82 posts are filed under Global Genes Events
Denim Dash 2017: Complete Your Virtual 5k for Rare Awareness
This April, Global Genes is asking you to show that you Care About RARE by participating in the third annual Virtual Denim Dash 5K! Dashers… Continue Reading
Global Genes® and Festival of Children Foundation Announce First RARE Carousel of Possible Dreams
Global Genes, a leading rare disease patient advocacy organization, and Festival of Children Foundation are proud to announce the first-ever… Continue Reading
Join Us for the Denim and Diamonds Fashion Show
February 28th, 2017 6:30-9:30 PM @ Pelican Hill Resort 22701 S Pelican Hill RD, Newport Coast, CA, 92657 Join us for the Denim and Diamonds… Continue Reading
Rare Disease Day Roundup: What’s Happening in Your Neighborhood?
Dewey Marino from San Diego, California wrote to inform us about a golf tournament taking place on November 25th to benefit the DDX3X… Continue Reading
Register For Our RARE Webinar: Health Insurance 101
Wednesday, February 1, 2017 at 10:00am PST  Anyone can tell you that navigating insurance is no easy task. Whether you have no medical… Continue Reading
Rare Disease Companies, Investors, Patient Groups to Convene in Union Square During JP Morgan Healthcare Conference for RARE in the Square
  Unique venue features rare disease innovation, collaboration, networking   ALISO VIEJO, Calif. — December 13, 2016 — Global… Continue Reading
A Look Back: Our 2016 Tribute to Champions of Hope
This year’s 2016 Tribute to Champions of Hope brought out many stars in the rare disease community. We were delighted to see so many… Continue Reading
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Upcoming Events

Sep 14

Rare Patient Advocacy Summit

September 14 @ 8:00 am - 5:30 pm
Sep 14

Rare Partnering 2017

September 14 @ 8:00 am - 5:00 pm
Sep 15

Rare Patient Advocacy Summit

September 15 @ 8:00 am - 4:00 pm
Sep 15

Community Nominated Ceremony and Reception

September 15 @ 4:30 pm - 9:00 pm
Sep 16

Corporate Alliance

September 16 @ 9:00 am - 12:00 pm
Sep 16

Rare Day of Beauty

September 16 @ 12:30 pm - 4:00 pm
Sep 16

Tribute to Champions of Hope

September 16 @ 5:30 pm - 10:30 pm