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Global Genes Programs

A total of 67 posts are filed under Global Genes Programs
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Introducing Brittany Trogen, 2016 Cox Prize for Compassion Finalist
For this year’s Cox Prize for Rare Compassion, we had three top finalist. Brittany Trogen submitted her essay on a family with a young… Continue Reading
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Meet the Speakers: Stephanie Gandomi Talks Genetic Counseling
  Working alongside the Global Genes team to help our patients find answers isn’t her only job. Stephanie Gandomi, MS, LCGC, Licensed… Continue Reading
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Introducing 2016 Speaker Kent Thoelke: Leveraging Big Data to Grow Clinical Trials
As part of our 2016 Patient Advocacy Summit, we’re excited to have Kent Thoelke, Executive Vice President, Scientific & Medical Affairs,… Continue Reading
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2016 RARE Patient Advocacy Summit to be Streamed LIVE on 9/22-9/23
Every parent, patient, caregiver, advocate and clinician has the right to learn how to best equip themselves against the confusion and… Continue Reading
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Register for Today’s Webinar: Effectively Communicate with Health Care Providers
Do you ever find it difficult to inform your physician about your rare disease–from symptoms to research to finding support to cope with… Continue Reading
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Announcing the Recipients for Our 5th Annual Tribute to Champions of Hope!
Philip Reilly To Receive Henri Termeer Lifetime Achievement Award   September 22-24 in Huntington Beach, CA   ALISO VIEJO, Calif. — July… Continue Reading
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Strategies for Effective Fundraising Now Available Online at Global Genes
Fundraising is a top priority for any foundation or organization delivering programs and services to the rare disease community.  The world… Continue Reading