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Global Genes Programs

A total of 79 posts are filed under Global Genes Programs
Global Genes Rare Disease Patient Impact Grant Goes Towards The LHON Genealogy Project
As a 11778G>A mutation carrier, Lissa Poincenot, founder of LHON.org, is forever connected to the Leber hereditary optic neuropathy (LHON)… Continue Reading
Celebrate Family Through the #HugsForHope Frame and Hashtag
Join the Rare Disease Community this Mother’s Day through Father’s Day in celebrating RARE Moments with family! Share your favorite… Continue Reading
Denim Dash 2017: Complete Your Virtual 5k for Rare Awareness
This April, Global Genes is asking you to show that you Care About RARE by participating in the third annual Virtual Denim Dash 5K! Dashers… Continue Reading
Have You Ordered Your Blue Denim Genes Ribbons®?
Just as the pink ribbon symbolizes breast cancer awareness, the Blue Denim Genes Ribbon® is a perfect universal sign for rare and genetic… Continue Reading
2017 RARE Patient Impact Grant Awardees
The RARE Patient Impact Grant Program offers support groups and nonprofits that care for patients affected by rare diseases the… Continue Reading
Celebrate World Rare Disease Day by Changing Your Profile Picture
Step 1. Upload a photo Step 2. Pick a frame  Step 3. Resize image  Step 4. Preview and save your photo Step 5. Save your photo by… Continue Reading
New Toolkits by Global Genes Educate Patients on Gene Therapy and Health Insurance
Over the past few years Global Genes has been providing patients with easy to understand guides or “toolkits” on everything from… Continue Reading