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Global Genes Programs

A total of 63 posts are filed under Global Genes Programs
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Register for Today’s Webinar: Effectively Communicate with Health Care Providers
Do you ever find it difficult to inform your physician about your rare disease–from symptoms to research to finding support to cope with… Continue Reading
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Announcing the Recipients for Our 5th Annual Tribute to Champions of Hope!
Philip Reilly To Receive Henri Termeer Lifetime Achievement Award   September 22-24 in Huntington Beach, CA   ALISO VIEJO, Calif. — July… Continue Reading
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Strategies for Effective Fundraising Now Available Online at Global Genes
Fundraising is a top priority for any foundation or organization delivering programs and services to the rare disease community.  The world… Continue Reading
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Global Genes Webinar: Today!
Hurry and register for today’s webinar at 10:00 am PST Scientific discovery is advancing rapidly, and new frontiers in gene therapy may… Continue Reading
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Nominate Your Rare Champion of Hope for 2016!
DO YOU KNOW A RARE CHAMPION OF HOPE WHO DESERVES PUBLIC RECOGNITION? If so, submit your choice today!  Submit your choice of a RARE… Continue Reading
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Denim Dashers 2016: Sallie Taylor & Family
This year’s second annual Denim Dash has so far pulled in over $55,000 in donations from across the globe! Patients, parents, friends and… Continue Reading
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Register for Latest Rare Webinar: Understanding Gene Therapy (4/26)
DATE: April 26, 2016 at 10:00 am PST Scientific discovery is advancing rapidly, and new frontiers in gene therapy may yield promise for new… Continue Reading
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