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In Rare Form

A total of 37 posts are filed under In Rare Form
A Thought-Provoking Documentary Offers Reminders to Research Participants
When Robert Shafran arrives as a freshman at Sullivan County Community College in New York’s Catskill Mountains, one person after another… Continue Reading
Going Boldly
I recently watched Star Trek IV: The Voyage Home, the movie where the crew of the USS Enterprise travels back in time from the 23rd century… Continue Reading
Getting FCS Providers on the Same Dietary Page
Lauren Williams had a problem. The registered dietitian nutritionists at Cook Children’s Health Care System in Fort Worth, Texas had a few… Continue Reading
Why Doctors Should Ask About the Use of Supplements in Patients with Down Syndrome
My wife is a pediatrician and in better health than I am. She is physically fit and obsessively exercises, which is more than I would claim… Continue Reading
Not Just a Pipe Dream
The U.S. Food and Drug Administration this week approved GW Pharma’s Epidiolex to treat seizures associated with Lennox-Gastaut syndrome… Continue Reading
Express Scripts Program Designed to Meet Needs of Payers, Not Patients
At the end of May, the pharmacy benefits manager Express Scripts announced a new program it said was aimed at “reducing the burden on… Continue Reading
Hacking Rare Disease
As a teenager, Bill Paseman worked with his father in the refineries around the Houston area. He remembers remarking to him at the time that… Continue Reading
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