November 13, 2018
Registry Hopes to Shed Light on Rare Disorders of Genetic Obesity
Read More
October 30, 2018
Fighting Emergency Medical Protocols that Endanger Rare Disease Patients
Read More
October 23, 2018
Learning to Listen to the Patient-Consumer
Read More
October 16, 2018
Giving New Meaning to “Translational Research”
Read More
September 28, 2018
How Rare Disease Advocates Can Get the Most out of Collaborations
Read More
September 25, 2018
Ferris Bueller and the Cost of Pivotal Clinical Trials
Read More
September 11, 2018
Greater Transparency Would Improve Patients’ Understanding of FDA Actions
Read More
August 29, 2018
Phrank Talk about Diagnosing Rare Diseases
Read More
Load More
X