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Global Genes News

A total of 71 posts are filed under Global Genes News
Global Genes® to Host 6th Annual Rare Patient Advocacy Summit September 14 – 15, 2017, Hotel Irvine, Irvine, California
On September 14-15, 2017, more than 700 rare disease stakeholders from around the globe will gather at Hotel Irvine in Irvine,… Continue Reading
Biotech Leader and Rare Disease Champion, Henri Termeer, Passes at Age 71
This last week, the Rare Disease Community lost a true Champion of Hope.  The announcement of Henri Termeer’s passing was met with shock… Continue Reading
Global Genes Founder, Nicole Boice, Featured in LOCALE Magazine
Nicole Boice Shares What It’s Like to Create an Organization From the Ground Up Written By: Iyana Edouard Photographed By: Adam… Continue Reading
Global Genes Awards 14 Patient Organizations through RARE Patient Impact Grant Program
 Global Genes®, a leading rare disease patient advocacy organization, is proud to announce the 2017 RARE Patient Impact Grant recipients.… Continue Reading
Who Will You Nominate During This Year’s 2017 RARE Champion of Hope Awards?
Annually, the RARE Disease Community comes together to look amongst themselves to identify and nominate individuals who have become… Continue Reading
Global Genes and EveryLife Foundation Announce First-Ever RARE on the Road – Rare Disease Leadership Tour
 Leading rare disease patient advocacy organizations Global Genes – Allies in Rare Disease and the EveryLife Foundation for Rare… Continue Reading
Shop on for Global Genes TODAY!
Great news! We have an upcoming 1-day opportunity to drive additional AmazonSmile donations for Global Genes. The American Customer… Continue Reading

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