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Global Genes News

A total of 48 posts are filed under Global Genes News
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It Is Your Last Chance to Register!
Don’t miss your LAST CHANCE to register for our 5th Annual RARE Patient Advocacy Summit! Using feedback from patient advocates, board… Continue Reading
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Global Genes Provides Over $100,000 in Scholarships
Global Genes, the leading global advocacy non-profit organization for patients and families fighting rare and genetic diseases, today… Continue Reading
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2016 RARE Champion Of Hope Honorees
Over 350 individuals and organizations worldwide were nominated by their peers for a RARE Champion of Hope award for their notable efforts… Continue Reading
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Global Genes Hosts 5th Annual Rare Patient Advocacy Summit and Tribute to Champions of Hope, Presented by PRA Health Sciences.
September 22 to 24, 2016, Hyatt Regency Resort and Spa, Huntington Beach, California. The annual blue carpet event following the two-day… Continue Reading
FDA CARE
Introducing the Path To Hope Campaign in Response to FDA Decision on Eteplirsen
The decision made by the FDA Advisory Committee does not only ​impact ​the affected Duchenne families,​ but ​the​ entire rare… Continue Reading
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Presenting New Global Genes Toolkit: Drug Development Series
What’s taking so long? Is anyone working on answers? How can I get involved? How can I be heard? If drug trials are successful, when am I… Continue Reading
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2016 Denim Dashers: Jordann Coleman
This year’s second annual Denim Dash has so far pulled in over $55,000 in donations from across the globe! Patients, parents, friends and… Continue Reading
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