Horizon Pharma plc Partners with Global Genes® to Unite the Rare Disease Community at the BIO International Convention
6.20.2017 Text the Word “RARE” to 565-12 to Generate a Donation to Global Genes DUBLIN, Ireland, June 20, 2017 (GLOBE NEWSWIRE) — Horizon… Continue Reading
Global Genes® to Host 6th Annual Rare Patient Advocacy Summit September 14 – 15, 2017, Hotel Irvine, Irvine, California
5.26.2017 On September 14-15, 2017, more than 700 rare disease stakeholders from around the globe will gather at Hotel Irvine in Irvine,… Continue Reading
Global Genes® to Convene RARE Partnering and Investor Forum to Accelerate Drug Development for Rare Diseases
5.19.2017 [Aliso Viejo, CA] May 19, 2017 – Global Genes®, a leading rare disease patient advocacy organization, will host the inaugural RARE… Continue Reading
4.13.2017 Global Genes®, a leading rare disease patient advocacy organization, is proud to announce the 2017 RARE Patient Impact Grant recipients.… Continue Reading
2.9.2017 Scholarships Provide Opportunity for People with Nephropathic Cystinosis to Pursue Educational and Career Goals. Global Genes® and Horizon… Continue Reading
Rare Disease Companies, Investors, Patient Groups to Convene in Union Square During JP Morgan Healthcare Conference for RARE in the Square
12.13.2016 Unique venue features rare disease innovation, collaboration, networking ALISO VIEJO, Calif. — December 13, 2016 — Global… Continue Reading
Global Genes® Expands Board of Directors & Medical and Scientific Advisory Board To Amplify Efforts for Rare Disease Community
12.8.2016 ALISO VIEJO, Calif. — December 8, 2016 — Global Genes®, one of the world’s leading nonprofit rare disease patient advocacy… Continue Reading
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