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RARE Toolkits

A total of 8 posts are filed under RARE Toolkits
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Now Online: Taking Control: Gaining Independence as a Young Adult with a Rare Disease
Transitioning to adulthood is hard enough. Doing it with a rare disease? That may require some guidance. So, Global Genes has put together… Continue Reading
Questionable Medication
New RARE Toolkit Release: Access to Unapproved Medicine
What if the medication you needed wasn’t available in the United States? Many patients with rare disease face this dilemma. Our newest… Continue Reading
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New Rare Toolkit, Genetic Testing: Is This My Path to a Diagnosis?
Can new testing reveal your diagnosis? That’s what our latest toolkit discusses as it delves into subjects like whole genome sequencing,… Continue Reading
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GLOBAL GENES™ Launches “RARE Toolkits” as Premier Educational Resource for the Rare Disease Community
Series of RARE Disease Toolkits Enable Advocates, Patients and Caregivers to Empower Themselves and Inspire Others With 1 in 10 Americans… Continue Reading
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New Educational Toolkits from Global Genes Demystify Rare Community’s Biggest Problems
Ask any parent to whip out their highlighted copy of the latest edition of Parenting a Child with a Life-Limiting Illness and you’ll be… Continue Reading