March 21, 2018
Why Rare Disease Research Matters
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March 19, 2018
An Innovative Biotech Strategy: Listen to Patients
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March 1, 2018
The Benefits of Patient-to Patient Interactions
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November 27, 2017
Why the Tax Bill Poses A Double Threat to My Family
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November 7, 2017
Shared Goals, Rather than a Transactional Approach, Can Keep Relationships with Industry Ethical
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June 28, 2017
“Pain Won’t Stop Me From Making Memories,” CRPS Patient Takes Back Up Her Favorite Winter Sport
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June 13, 2017
WIRED: A Radical Proposal For Preventing Rare Genetic Diseases
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May 26, 2017
Rare Disease Report: China’s Rare Disease Policy (or Lack Thereof)
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April 28, 2017
Alexi’s Story: One Mother Shares Her Daughter’s Journey With ADNP
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April 14, 2017
Parent of a Medically Complex Child, “I am Always Choosing Between the Lesser of Two Evils”
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April 10, 2017
Parents, Precision Medicine, Genetics and Autism – The Discovery of an Early-Age Biomarker for a Rare Syndrome Highly Linked to Autism
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March 30, 2017
An Invisible Illness Survivor Turns Her Journey Into a Cinematic Resource for Patients
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