March 21, 2018
Why Rare Disease Research Matters
March 19, 2018
An Innovative Biotech Strategy: Listen to Patients
March 1, 2018
The Benefits of Patient-to Patient Interactions
November 27, 2017
Why the Tax Bill Poses A Double Threat to My Family
November 7, 2017
Shared Goals, Rather than a Transactional Approach, Can Keep Relationships with Industry Ethica...
June 28, 2017
“Pain Won’t Stop Me From Making Memories,” CRPS Patient Takes Back Up Her&hel...
June 13, 2017
WIRED: A Radical Proposal For Preventing Rare Genetic Diseases
May 26, 2017
Rare Disease Report: China’s Rare Disease Policy (or Lack Thereof)
April 28, 2017
Alexi’s Story: One Mother Shares Her Daughter’s Journey With ADNP
April 14, 2017
Parent of a Medically Complex Child, “I am Always Choosing Between the Lesser…
April 10, 2017
Parents, Precision Medicine, Genetics and Autism – The Discovery of an Early-Age Biomarke...
March 30, 2017
An Invisible Illness Survivor Turns Her Journey Into a Cinematic Resource for Patients