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A total of 378 posts are filed under Innovation
PreventionGenetics Presents New Genetic Tests to Answer Questions on Stillbirths, Miscarriages, and Neonatal Death
Experiencing a miscarriage, stillbirth, or neonatal death can be devastating. It can leave parents with a lot of questions, like will it… Continue Reading
FDA Grants Priority Review Designation for Actemra in Giant Cell Arteritis
Genentech, a member of the Roche Group (SIX: RO, ROG; OTCQX: RHHBY), announced today that the U.S. Food and Drug Administration (FDA) has… Continue Reading
How to Pack for an Extended Hospital Stay
For many rare disease patients, the thought of a long hospital stay can bring up a lot of emotions—despair, fear, even the stirrings of… Continue Reading
Penn Medicine Explores ResearchKit’s Potential for Studying Rare Disease
[SOURCE: Mobi Health News] In a first for the University of Pennsylvania Health System, Penn Medicine launched a new ResearchKit app today… Continue Reading
Fierce Biotech: Ex-GSK rare disease head moves to Genenta
by Ben Adams (source) Carlo Russo has joined a growing list of ex-GlaxoSmithKline staffers moving into biotech after working on and helping… Continue Reading
Lysogene Receives Rare Pediatric Disease Designation from FDA for LYS-GM101 for Treatment of GM1 Gangliosidosis
Lysogene, a leading, clinical-stage biotechnology company specializing in gene therapy for rare central nervous system diseases, today… Continue Reading
RDR: Generic Xyrem to Treat Narcolepsy Gets FDA Approval
The FDA has approved a generic version of Xyrem (sodium oxybate) Oral Solution, to treat cataplexy and excessive daytime sleepiness in… Continue Reading

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