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Patient Tools

A total of 50 posts are filed under Patient Tools
Join BIO Action! A New Way to Advocate
On the forefront of furthering lifesaving, landmark innovation, the biotechnology industry in 2017 promises to continue to heal, fuel and… Continue Reading
Rare Disease
Philippines Begins Drive to Help Rare Disease Sufferers
Source  [MANILA] The Philippines is ramping up efforts to develop a nationwide registry of rare diseases to provide better access… Continue Reading
Illumina Announces the iHope Network, an Expansion of Its iHope Philanthropic Clinical Whole Genome Sequencing Program
Illumina, Inc. (NASDAQ:ILMN) today announced the launch of the iHope Network, a consortium of member institutions who have committed to… Continue Reading
Aldeyra Therapeutics Launches the Aldeyra Registry for Patients with Sjögren-Larsson Syndrome
Aldeyra Therapeutics, Inc., a biotechnology company focused on the development of products to treat diseases related to aldehydes, today… Continue Reading
For Patients: Are You Getting the Most Out of Your Doctor Appointment?
By Annie Achee   Wondering how you can get the most out of your doctor appointment? Follow these simple steps.   1) If you think you’ll… Continue Reading
How to Pack for an Extended Hospital Stay
For many rare disease patients, the thought of a long hospital stay can bring up a lot of emotions—despair, fear, even the stirrings of… Continue Reading
Penn Medicine Explores ResearchKit’s Potential for Studying Rare Disease
[SOURCE: Mobi Health News] In a first for the University of Pennsylvania Health System, Penn Medicine launched a new ResearchKit app today… Continue Reading
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