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Patient Tools

A total of 53 posts are filed under Patient Tools
Introducing SideEQ: A Free Tool That Helps You Manage Cancer Treatment Side Effects
SideEQ is a free, interactive platform which enables people living with cancer to track and manage their side effects so they can improve… Continue Reading
Progeria School Curriculum Is Launching!
The Progeria Research Foundation is excited to announce the creation of a middle and high school curriculum that motivates teens to believe… Continue Reading
Designing Effective Rare Disease Registries
by Raymond A. Huml, MS, DVM, RAC and Margaret Dean, MBA, Quintiles MS at DDDmag.com   Rare disease research was once a neglected aspect of… Continue Reading
Join BIO Action! A New Way to Advocate
On the forefront of furthering lifesaving, landmark innovation, the biotechnology industry in 2017 promises to continue to heal, fuel and… Continue Reading
Rare Disease
Philippines Begins Drive to Help Rare Disease Sufferers
Source  [MANILA] The Philippines is ramping up efforts to develop a nationwide registry of rare diseases to provide better access… Continue Reading
Illumina Announces the iHope Network, an Expansion of Its iHope Philanthropic Clinical Whole Genome Sequencing Program
Illumina, Inc. (NASDAQ:ILMN) today announced the launch of the iHope Network, a consortium of member institutions who have committed to… Continue Reading
Aldeyra Therapeutics Launches the Aldeyra Registry for Patients with Sjögren-Larsson Syndrome
Aldeyra Therapeutics, Inc., a biotechnology company focused on the development of products to treat diseases related to aldehydes, today… Continue Reading
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