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Patient Tools

A total of 52 posts are filed under Patient Tools
Progeria School Curriculum Is Launching!
The Progeria Research Foundation is excited to announce the creation of a middle and high school curriculum that motivates teens to believe… Continue Reading
Designing Effective Rare Disease Registries
by Raymond A. Huml, MS, DVM, RAC and Margaret Dean, MBA, Quintiles MS at DDDmag.com   Rare disease research was once a neglected aspect of… Continue Reading
Join BIO Action! A New Way to Advocate
On the forefront of furthering lifesaving, landmark innovation, the biotechnology industry in 2017 promises to continue to heal, fuel and… Continue Reading
Rare Disease
Philippines Begins Drive to Help Rare Disease Sufferers
Source  [MANILA] The Philippines is ramping up efforts to develop a nationwide registry of rare diseases to provide better access… Continue Reading
Illumina Announces the iHope Network, an Expansion of Its iHope Philanthropic Clinical Whole Genome Sequencing Program
Illumina, Inc. (NASDAQ:ILMN) today announced the launch of the iHope Network, a consortium of member institutions who have committed to… Continue Reading
Aldeyra Therapeutics Launches the Aldeyra Registry for Patients with Sjögren-Larsson Syndrome
Aldeyra Therapeutics, Inc., a biotechnology company focused on the development of products to treat diseases related to aldehydes, today… Continue Reading
For Patients: Are You Getting the Most Out of Your Doctor Appointment?
By Annie Achee   Wondering how you can get the most out of your doctor appointment? Follow these simple steps.   1) If you think you’ll… Continue Reading
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