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Patient Tools

A total of 35 posts are filed under Patient Tools
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FindaCure Launches New Online Portal
To add to many of their exciting online projects this year, FindaCure has launched a new online portal to give patients, advocates and… Continue Reading
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A New Drug for Acomegaly Patients? MPowered Offers Oral Alternative
  CLINICAL TRIAL OF AN ORAL ALTERNATIVE If approved as the first oral somatostatin analog treatment for acomegaly, octreotide capsules may… Continue Reading
New White Paper By Total Orphan Drugs & Terrapinn
Rare diseases present an array of challenges to patients, their families and caregivers, and physicians. Arriving at an early and accurate… Continue Reading
Business Weekly: Lumie Throws New Light on Huntington’s Disease Research
Cambridge-based light therapy specialist Lumie is supplying some of its lamps for use in a research study into Huntington’s disease being… Continue Reading
Five Applicants In Need Will Get A Whole Genome Sequencing Test Courtesy of SWAN and ORKO’s GeneDx
OPKO Health, Inc. (NYSE:  OPK) through its GeneDx subsidiary and Syndromes Without a Name (SWAN) are proud to announce the donation of… Continue Reading
Introducing the Narcolepsy Education Toolbox by Global Genes, Narcolepsy Network and Wake Up Narcolepsy
The Narcolepsy Education Toolbox is a collaboration between Narcolepsy Network and Wake Up Narcolepsy, two nonprofit patient advocacy… Continue Reading
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Dr. Mark Korson: An Ambitious Plan for Metabolic Disease Education
by Mark Korson, MD One of the biggest concerns of patients with metabolic disorders is the lack of physicians who are knowledgeable about… Continue Reading
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