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Patient Tools

A total of 48 posts are filed under Patient Tools
Illumina Announces the iHope Network, an Expansion of Its iHope Philanthropic Clinical Whole Genome Sequencing Program
Illumina, Inc. (NASDAQ:ILMN) today announced the launch of the iHope Network, a consortium of member institutions who have committed to… Continue Reading
Aldeyra Therapeutics Launches the Aldeyra Registry for Patients with Sjögren-Larsson Syndrome
Aldeyra Therapeutics, Inc., a biotechnology company focused on the development of products to treat diseases related to aldehydes, today… Continue Reading
For Patients: Are You Getting the Most Out of Your Doctor Appointment?
By Annie Achee   Wondering how you can get the most out of your doctor appointment? Follow these simple steps.   1) If you think you’ll… Continue Reading
How to Pack for an Extended Hospital Stay
For many rare disease patients, the thought of a long hospital stay can bring up a lot of emotions—despair, fear, even the stirrings of… Continue Reading
Penn Medicine Explores ResearchKit’s Potential for Studying Rare Disease
[SOURCE: Mobi Health News] In a first for the University of Pennsylvania Health System, Penn Medicine launched a new ResearchKit app today… Continue Reading
Guide to Donating Blood: What to Know Before You Go | FIX.com
Thanks to FIX.com for sharing this piece. Donating blood can be a scary thought. The idea of the needle alone might make you squirm and… Continue Reading
World’s Largest-Ever Study of SYNGAP1 (MRD5) Launches
Bridge the Gap – SYNGAP Education and Research Foundation has launched the largest-ever study to research SYNGAP1 that causes… Continue Reading
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