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Insights

A total of 952 posts are filed under Insights
Why Rare Disease Research Matters
Every year, there are so many different projects at fairs surrounding high profile diseases, such as various types of cancer, Alzheimer’s,… Continue Reading
Why Rare Diseases May Be More Common Than Thought
Rare genetic diseases can be difficult for doctors to recognize, particularly when the symptoms of a disease fall short of dramatic,… Continue Reading
How My Lynch Syndrome Diagnosis Will Help Protect My Family
Author: Sandie Neitzel In May of 2017, at the age of 58, I was diagnosed with uterine cancer, and had a radical hysterectomy.  After my… Continue Reading
An Innovative Biotech Strategy: Listen to Patients
Innovation drives the biotechnology industry, but despite the dazzling power of science and technology, sometimes you can achieve more with… Continue Reading
2q23.1 Diagnosis Leads Mom to Start Online Boutique for Daughter’s Future
Author: Sarah Fister-Brewer In 2004, I embarked on my motherhood journey with a baby girl named Madeline. As most pregnant ladies, before… Continue Reading
A Matchmaker for Patients Seeking Clinical Trials
In the past day, I’ve had several rare and common diseases, including some horrendous stuff, but all in the name of science. My sudden… Continue Reading
I’m a Young Mom of 3 and a Guillain-Barré Warrior
I was a normal 26-year-old mother of 3, in perfect shape and health. Well, maybe I had to lose about 10 more pounds from being pregnant the… Continue Reading