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Insights

A total of 974 posts are filed under Insights
Learning to Listen to the Patient-Consumer
Shay Brill remembers shopping at malls during store hours, standing in long lines before Christmas, and the frustration of finding a… Continue Reading
Giving New Meaning to “Translational Research”
For rare disease advocates, getting access to the latest medical research can be daunting. The high price tag makes paying for access to… Continue Reading
The What and the How
I tend to multi-task, thanks to a little help with some modest technology. During any given day I will have a long to-do list on my computer… Continue Reading
Teaching Others to See
Hours after Rachel Callander’s daughter Evie was born, the infant was having difficulty eating and began choking. The medical staff at the… Continue Reading
Ferris Bueller and the Cost of Pivotal Clinical Trials
It turns out asking what a pivotal phase 3 clinical trial costs is a little like asking, “What does a car cost?” The answer will depend… Continue Reading
Thinking Ahead
When the European Medicines Agency approved Myozyme in 2006, Genzyme’s enzyme replacement therapy for the lysosomal storage disorder… Continue Reading
Greater Transparency Would Improve Patients’ Understanding of FDA Actions
When the U.S. Food and Drug Administration declines to approve a new medicine, its delivers the news to the drug developer in what’s known… Continue Reading
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