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Guest Bloggers

A total of 49 posts are filed under Guest Bloggers
z Cals Cupcake Sept 20, 2014 2--17
Parenting a Child with a Terminal Illness: The Cupcake Revolution
Thanks to Slate.com for this story. Three years have passed since I published “Mothering Cal” in Slate, just before Mother’s Day… Continue Reading
Bio-banks in the life sciences building on Wednesday January 23, 2013.
Biobanking on the Future: How Biobanking Supports Research
By: Tara Schmidlen, MS LCGC, Genetic Counselor, NIGMS Human Genetic Cell Repository, Coriell Institute for Medical Research, Camden, NJ USA… Continue Reading
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Banking for the Future: How Biobanking Helps the Rare Disease Community
By: Tara Schmidlen, MS LCGC, Genetic Counselor, NIGMS Human Genetic Cell Repository, Coriell Institute for Medical Research, Camden, NJ USA… Continue Reading
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Sharing America’s Marrow: A Road Trip
In 2015, three twenty-something women traveled to all 50 states to raise awareness about blood cancer and blood diseases and to register… Continue Reading
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Lessons from a Yard Sale from a Rare Disease Mom
by Christine Waggoner Recently, we held our first yard sale to raise funds for a cure for GM1 Gangliosidosis. GM1 is a rare fatal… Continue Reading
Never Bet Against Occam
Never Bet Against Occam: A Mast Cell Book Review and Call to Action
by Elizabeth Paddock “Can I buy a few books?” I called to my husband who was washing dishes one room over. “Sure,” came the reply.… Continue Reading
Victoria
One Woman’s Foray into Fundraising for Rare Disease Foundation
There was a news story done in Calgary by CTV, here is the link http://calgary.ctvnews.ca/calgary-families-mark-rare-disease-day-1.2797916. … Continue Reading
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