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A total of 302 posts are filed under Series
My Life with Ehlers Danlos: Illness Guilt
by Tiffany Early Initially, one of the most disabling components of my illness was the guilt that came with it. I constantly felt guilty for… Continue Reading
Adapting to Limitations: My Recent Adventures with Insurance and Remicade
by Joan Friedlander I’ve been receiving Remicade infusions for treatment of Crohn’s Disease for over 10 years now. Until a year ago, I… Continue Reading
RARECast: Helping Rare Disease Patients Navigate the World of Information
    The Internet has opened up a world of information to rare disease patients, but it can often be hard to access, understand, or… Continue Reading
RARECast: Overcoming the Challenges of Rare Disease Drug Development
The translation of a drug from discovery to development faces a number of obstacles, but these can be amplified for rare disease therapies… Continue Reading
Sick But Social: Love Is Blind and Fabulous
By Stacey Philpot I’ve long since considered myself defective. I picture my body as something purchased from the bottom of a clearance bin… Continue Reading
RARECast: Moving Rare Disease Therapies from Hope to Reality
World Rare Disease Day, an annual international effort to create awareness for rare diseases, will take place on February 28th. This year,… Continue Reading
RARECast: Children’s National Launches First-of-its-Kind Rare Disease Center
Last month, Children’s National Health System, the world’s largest provider of care for children with rare genetic disorders, announced… Continue Reading