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A total of 296 posts are filed under Series
RARECast: Children’s National Launches First-of-its-Kind Rare Disease Center
Last month, Children’s National Health System, the world’s largest provider of care for children with rare genetic disorders, announced… Continue Reading
My Life with Ehlers-Danlos: How to Make Medical Expenses Less Overwhelming
Readers, I would be lying if I told you that the expense of being chronically ill isn’t overwhelming at times. It’s always worse now… Continue Reading
RARECast: A Common Link in a Group of Rare Diseases Creates an Opportunity for Repurposing
A group of rare, genetic, and metabolic diseases known as lysosomal storage disorders are largely without treatments. Mark Noble believes… Continue Reading
Sick But Social: The One Who Comes To Steal
By Stacey Philpot Have you ever fallen victim to a robbery? Perhaps while you were slumbering, one foot thrust outside of the covers and one… Continue Reading
RARECast: Sobi Works to Expand Rare Disease Indications for Its Drugs
Sobi is a drugmaker focused on hemophilia, inflammation, and genetic and metabolic diseases. It is now pursuing its drug Orfadin, used to… Continue Reading
RARECast: Why Rare Disease Patients Should Work Together to Address Common Concerns
  The large number of rare diseases and the small number of patients afflicted with any one of them can help fuel a sense of isolation… Continue Reading
RARECast: Solving Medical Mysteries with the Wisdom of Crowds
  The search for a diagnosis can be a long and difficult journey for patients with a rare disease, but CrowdMed is offering a different way… Continue Reading

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