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A total of 261 posts are filed under Series
Life with Ehlers-Danlos: Handicap Tips for Stadium Seating
September means a lot of things. It’s the time when it’s officially acceptable to add pumpkin spice to everything. (Thank goodness!) In… Continue Reading
Is Your Child Having a Pain-Related Meltdown? When is a Tantrum is More Than Just a Tantrum?
By Lisa  Moreno-Dickinson We have all been at a store, a doctor’s office, church, almost anywhere and seen a child have a tantrum. Most… Continue Reading
RARECast-Melissa Bryce Gamble
RARECast: Why Natural History Studies Should Matter to Rare Disease Patients
Peroxisomal disorders are a group of rare and heterogeneous metabolic diseases. Earlier this year, the National Organization for Rare… Continue Reading
RARECast: Harnessing Big Data to Work for Rare Disease Patients
  The improved ability to generate and capture data is providing researchers with the potential for new insights into diseases, but the… Continue Reading
33248988 - smart medical doctor hand drawing network with operating room as concept
Adapting to Limitations: Is Your Doctor “The One?”
by Joan Friedlander Note: this article represents the author’s experience and should not be construed as medical advice. Over the course… Continue Reading
Sick But Social: To Who Do You Matter?
As a young girl, I engaged in every variety of romantic future telling. If you could write the name of a cute boy, a house, a number of… Continue Reading
Life With Lowe: How I Handle My Son’s Tantrums
My son develops quirks and obsessions easily. Most of the time these obsessions eventually go away, however, it doesn’t take long before… Continue Reading

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