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A total of 275 posts are filed under Series
RARECastpat-furlong
RARECast: Discovering the Creative Use of Outrage
When a doctor delivered a devastating diagnosis to Pat Furlong for her two sons with Duchenne Muscular Dystrophy, she refused to sit by and… Continue Reading
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3 Illuminating Career Questions for Young Adults Living with Rare Disease
By Joan Friedlander I recently participated in a panel discussion at the CureDuchenne Family Summit in California. We talked about the… Continue Reading
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Unraveling Rare: Eosinophilic Esophagitis
Eosinophilic Esophagitis (EoE) is a chronic allergic/immunologic disorder leading to inflammation of the esophagus. In this disorder, large… Continue Reading
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Sick But Social: Did You Just Cough In My Face?
By Stacey Philpot I avoid germs like the plague because for me, well, germs pretty much are the plague. What may be just a little virus or… Continue Reading
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RARECast: Charles River Sees Opportunity in Fostering Rare Disease Collaborations
  Drug discovery in the rare disease space is increasingly reliant on collaborations between patient groups, industry, and academia.… Continue Reading
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RARECast: Abeona Advancing Pipeline of Gene Therapies for Rare Diseases
Gene therapy has the promise of radically changing the landscape for rare disease patients who are without therapeutic options today. Abeona… Continue Reading
RARECast-emma-rooney
RARECast: A Patient Attends “An Academic Conference for Everyone”
  Rare disease patients are exerting an increasing influence on every aspect of the healthcare continuum and this includes the area of… Continue Reading