September 13, 2021
NORD Warns Provision in Biden Administration’s Ambitious Legislation Would Cut Benefits of Orphan Drug Tax Credit
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June 25, 2021
Senators Introduce Legislation to Help Diagnose Children with Rare Diseases
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March 12, 2021
Congress Introduces Legislation Intended to Speed Development of Rare Disease Therapies
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September 22, 2020
When Nothing Can Mean Everything
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July 13, 2020
Bill Seeks to Strengthen Review of Rare Disease Treatments
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February 28, 2020
Rare Disease Advocates Take to the Hill
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July 25, 2019
Bipartisan Legislation Seeks to Save Government $100 Billion in Drug Costs
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June 19, 2019
Minnesota Governor Signs Bill Creating Rare Disease Advisory Council
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April 24, 2019
ACE Kids Act to Improve Coordination of Care for Medically Complex Kids
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November 28, 2018
Senator Gillibrand Calls for $1 Billion in Emergency Funding to Combat AFM
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October 19, 2018
Why Rare Disease Drug Developers Need Regular Interaction with the FDA
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