Subscribe to
this category
r

Patient Stories

A total of 227 posts are filed under Patient Stories
thinkstock_7.16.15_ivdrip
Girl with Parkes Weber Syndrome Deliver Message on Body Acceptance
 A Canadian teen with a rare disease that causes one leg to permanently swell to double its size has captured the Internet’s attention… Continue Reading
5002674_1435972248.9574_funddescription
3-Year-Old Citrullinemia Patient Gains Support From Leukemia Survivor, Local Band
Three-year-old Raylea Morgan tries to keep up with her baby brother. The toddler suffers from a rare genetic disorder in the liver… Continue Reading
Screen Shot 2015-07-17 at 10.34.47 PM
This Patient Never Dreamed Her Stomach Pain Would Lead to Complex Diagnosis
Nina Perez knew something was wrong when her symptoms started to progress. She never dreamed that her diagnosis would be  Budd-Chiari… Continue Reading
takayasu-arteritis
Calgary Nurse, Doctor Save Boy with Rare Takayasu Arteritis
For a child with a rare blood disease, Ben Anderson is lucky. The four-year-old’s condition could have gone undetected until it caused… Continue Reading
IMG_9823
Ethan with Bartter Syndrome Sworn in as an Honorary Air Force Second Lieutenant
Ethan Hoffman, 12, joins 910th Airlift Wing By William K. Alcorn, alcorn@vindy.com Ethan Hoffman, 12, of Howland, became the 910th Airlift… Continue Reading
1435182903_806f
Milton Man with Rare Disease Finds Inspiration in Art
CHECKORPHAN REPORTS The Cystinosis Research Network (CRN), a Chicago-based 501(c)(3) charitable organization, is hosting its family… Continue Reading
prom-teen-800
PEOPLE: Teen with Epidermolysis Bullosa Gets to Attend Prom in Fairytale Evening
Cinderella once said that a dream is a wish your heart makes, and for a Columbus, Ohio, high school senior battling a rare skin disease, her… Continue Reading