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Patient Stories

A total of 293 posts are filed under Patient Stories
Woman Fights Rare Cancer Called Rhabdomysarcoma
Hastings woman Harmony Te Meihana is two years into a five-year journey – a journey fuelled by a strong spirit and absolute determination.… Continue Reading
Firefighter Steps Down From Brigade to Fight Ataxia
A BRAVE firefighter battling a rare illness is to step down from the brigade. Martin Barker launched a campaign to raise awareness of the… Continue Reading
Saskatchewan Government Will Pay for Morquio Syndrome Treatment for Three Children
The Saskatchewan government says it will pay for an unproven drug for three siblings who have a rare and often fatal blood disease. Health… Continue Reading
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Young Prader-Willi Patients Becomes Fire Chief For the Day
A community came together to give one little girl a big Halloween surprise. Gracie Duplisea, age 7, has a rare disease called… Continue Reading
Parent Brings Focus to Needs of Caregivers in ICU
Grayson has a rare disease that threatens life daily. His dads spent a lot of time by his bedside and have created a campaign to help… Continue Reading
Sydney Markets Fruit Auction Raises $75,000 for Duchenne Muscular Dystrophy
Sydney Market wholesalers have raised more than $75,000 for charity at a special auction including summer fruits. The money raised goes to… Continue Reading
Rare LCHAD Disorder Means Two-Year-Old Must Eat Every Hour
To all the new parents struggling to feed their newborn every two to three hours, imagine having to do it every hour—for years. Such is… Continue Reading

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